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On the eve of World Cancer Day, the International UnionAgainst Cancer (UICC) and sanofi-aventis present their initial interim report on the My child mattersprogramme, launched in 2004 to advance the fight against childhood cancers in countries wherepaediatric oncology is nonetheless struggling to emerge. The initiative so far has funded 26 projects* in 16resource-constrained countries: Bangladesh, Bolivia, Egypt, Honduras, Indonesia, Kenya, Mali,Morocco, Peru, the Philippines, Romania, Senegal, Tanzania, Ukraine, Venezuela and Vietnam.
Although childhood cancers represent a small percentage of all cancers, the gap within the survival ratebetween industrialized and developing countries is marked and it is in these resource-constrainedcountries that 80% of children with cancer live. Every year, far more than 160,000 children arediagnosed with cancer and approximately 90,000 die. In industrialized countries, nearly 80% of children being treated for cancer will survive. Unfortunately, this survival rate drops to 20% andeven 10% in developing countries where access to information, early detection, effective care andtreatment are typically not available. And yet today, most childhood cancers can be cured provided theyare detected early and treated on time.
Because every child is important, the My Child Matters programme encourages institutions(hospitals, NGOs, etc.) to develop pragmatic approaches to improve awareness, early diagnosis,access to care and treatment, pain control and better management with the social and cultural aspectsof the disease for both children and their families.
Thanks to financial support (up to ?50,000 per year per project), advice from “mentors” on theAdvisory Steering Committee, and the assistance of local sanofi-aventis teams, the pilot projectsare beginning to bear fruit.
So far, 900 members with the medical professions have participated in training sessions on childhoodcancer and its management, 4,000 children have benefited from these programmes, and two,100families are being given support to assist them gain a better understanding of their child’s disease andhow to live with it. In Tanzania for example, the project that was given support has already helpedto reduce the time needed to analyse the results of a biopsy from six to two weeks. The number ofchildhood cancers diagnosed has improved from 145 to 364 at the end of 2006 (2007 objectives areto reduce the time to analysis to under a week and to diagnose 650 children). In Honduras, thetreatment dropout rate has fallen from 22% at the start of the project to 10% at the end of 2006 (theobjective is to reduce it to 5% by the end of 2007). The number of families who have receivedpsychological and social help has also increased, from only a few dozen to start with to 200families in Egypt, 300 in Bangladesh, 360 in Venezuela and 450 in Vietnam by the end of 2006.
These preliminary and encouraging results show that it is probable to help project managers to reachprogressively the objective of giving children from these countries the same chances of survival asthose living in developed countries.
Dr Franco Cavalli, the president of UICC, says, “We must improve the survival rate of children withcancer worldwide. In developing countries, where 80% of children with cancer live and survivalpercentages are the lowest, government health budgets are insufficient to meet all needs. Thanks tothe ‘My Child Matters’ programme, experts communicating through international networks forgevaluable and lasting relationships. This initiative is helping to raise awareness that childhoodcancers respond to treatment and can frequently be cured.”
This commitment is shared by Jean-Fran?ois Dehecq, Chairman of sanofi-aventis, who adds: “Oneof the essential roles of a company like ours is to identify new avenues for research and to makeinnovative and effective treatment available to patients. Our corporate sponsoring action enablesus to go a step further and construct, with UICC, a programme which encourages initiatives incountries where p?diatric oncology is less advanced, by giving them financial support andpromoting an exchange of experience. Helping to even out the excessive differences betweencountries, in particular to help children also means much more solidarity“.
About UICC
The International Union Against Cancer (UICC) is the only international non-governmentalorganization that is dedicated solely towards the global control of cancer. Its vision is of a world wherecancer is eliminated as a major life threatening disease for future generations. With over 270member organizations in much more than 80 countries, UICC is a resource for action and a voice forchange.
About sanofi-aventis
Sanofi-aventis is one with the world’s leading pharmaceutical companies. Backed by a world-classR&D organization, sanofi-aventis is developing leading positions in seven majorMain de San Andres University, La Paz
3. Fighting childhood cancers and increasing early diagnosis in paediatric oncology Dr Yolanda Ernst, Instituto del Oriente Boliviano, Santa Cruz
Egypt
1. Increasing awareness and reinforcing social well-being in children with cancer A Omar, Fakkous Cancer Center, Fakkous.
2. Inform and educate to improve patient management in paediatric oncology SA Hadi, National Cancer Institute, Cairo
Honduras
1. Fighting treatment dropout in paediatric oncology patients through the creation of multi-regional satellite clinics L Fu, Hospital Escuela Tegucigalpa
Indonesia
1. Childhood leukaemia and retinoblastoma early detection and reference treatment campaign Dr Melissa S Luwia, Indonesian Cancer Foundation, Jakarta Pusat
2. Programme for early detection and prompt treatment of retinoblastoma in Indonesia Rita S Sitorus,Department of Ophthalmology, Faculty of Medicine, University of Indonesia, Jakarta Pusat
Kenya
1. Raising awareness of the prevalence of Burkitt’s lymphoma to increase early detection, prompt treatment along with the identification of associated environmental and familial factors Prof Nicholas Anthony Othieno Aninya, Kenya Medical Research Institute, Nairobi
Mali
1. Improving medical management and psychosocial support for children with cancer in Mali Dr Togo Boubacar, Gabriel Toure Hospital, Bamako
Morocco
1. National campaign to increase early diagnosis of childhood cancers FM Alaoui, La Maison de l’avenir, Rabat
2. Pain management in children with cancer M Harif, Moroccan Society of Haematology and Paediatric Oncology, Casablanca
Peru
1. Survey of p?diatric oncology in Peru. Proposal to set up a medical children’s home Dr Gustavo Sarria Bardales, INEN (National Institute of Cancer Patients), Lima
2. Improving care and quality of life of children with cancer Nelly Isabel Therese Huamani and CarlosEnrique Preciado Huapaya, ALDIMI, Lima
Philippines
1. Extending access to treatment and improving care of childhood retinoblastoma and leukaemia – JLecciones, Philippine Children’s Medical Center, Quezon City
Romania
1. Improvement of diagnostic services for children with cancer Doina Mihaila, St Mary’s EmergencyChildren’s Hospital, Iasi
2. Assessing childhood cancer burden in Romania and suggesting possible improvements Adela Ratiu, Institute of Oncology “Prof Dr Alex Trestioreanu”, Bucharest
3. Building a future for Romanian children living with cancer Olga Rodica Cridland, PAVEL Association, Bucharest
Senegal
1. Setting up a paediatric oncology continuous care unit C Moreira, H?pital le Dantec, Dakar
Tanzania
1. Extending access to treatment for childhood Burkitt’s lymphoma T Ngoma, Ocean Road Cancer Institute, Dar es Salaam
Ukraine
1. Immunocytochemical diagnosis of leukaemias and malignant tumours in children D Gluzman, National academy of Sciences with the Ukraine, Kiev
Venezuela
1. Nutritional and psychosocial support for paediatric oncology patients and their families C Machuca, Oncology Institute, Dr Luis Razetti, Caracas
2. Improving the safety of parenteral nutrition by the creation of a special unit and the training ofhealthcarers C Zappi, Children’s Hospital, JM de los Rios, Caracas
Vietnam
1. Programmes for prevention, care and support of childhood cancers in Vietnamese provinces N. Ba Duc, National Cancer Institute, Hanoi.
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